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The Mental Burden of Parents of Children with Thalassemia

Jurnal Keperawatan Padjadjaran · Vol. 7 No. 1 (2019) · hlm. 94–102

DOI
10.24198/jkp.v7i1.1154
ISSN
2442-7276, 2338-5324
Terbit
2019-04-29
Penerbit
Faculty of Nursing Universitas Padjadjaran
Bahasa
eng

Abstrak

Thalassemia is an inherited blood disorder in which there is a chronic abnormality of red blood cells. When a child suffers from a severe illness, the family usually acts as caregivers, which put them at risk of experiencing a burden of care. This study aims to identify the level of charge perceived by parents caregivers of children with thalassemia. A quantitative approach was used in this research to obtain data by using a continuous sampling. The samples in this research consisted of 71 parents of children with thalassemia, who are either their biological father or mother who attended thalassemia center on August 30, 2017 - September 13, 2017. The instrument was used in this research was modified from a Caregiver Burden Scale instrument (developed by Elmstahl). The data obtained were analyzed using a descriptive statistical technique in which parents burden is categorized into three levels: mild, moderate, and severe levels of burden, and they are measured in percentage. The result showed that 36 respondents (50.7%) perceived a mild level of burden, 31 respondents (43.7%) perceived moderate level of burden, and four respondents (5.6%) saw the severe level of burden. This study concludes that most respondents perceived a mild and moderate level of burden, but in terms of responsibility, economy, expectation, and anxiety, they showed a severe degree of burden. Nurses are suggested to maintain or alleviate the burden by providing education, counseling, emotional support and adaptive coping mechanisms for parents of children with thalassemia.

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31 penulis · 60 tautan kepenulisan bersama · 5 lintas organisasi

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  • Padjadjaran University
  • Dr. Hasan Sadikin General Hospital
  • Sekolah Tinggi Ilmu Kesehatan Marendeng Majene
  • Universitas Halu Oleo
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Rekan penulisOrganisasiArtikel bersama
Aat SriatiPadjadjaran University2
Henny Suzana MedianiPadjadjaran University2
Suryani SuryaniPadjadjaran University2
Meila Sabridatia PutriAfiliasi tidak diketahui2
Taty HernawatyPadjadjaran University1
Hadi Suprapto ArifinAfiliasi tidak diketahui1
Dwi Esti HandayaniAfiliasi tidak diketahui1
Putri Yani LubisAfiliasi tidak diketahui1
Afif Amir AmrullahAfiliasi tidak diketahui1
Yelsi WantiPadjadjaran University1
Nita FitriaPadjadjaran University1
Nurlaily AfiantiDr. Hasan Sadikin General Hospital1
Sari FatimahPadjadjaran University1
Uray Fretty HayatiPadjadjaran University1
Shelly IskandarPadjadjaran University1
Irfa IrfanSekolah Tinggi Ilmu Kesehatan Marendeng Majene1
Sri HendrawatiPadjadjaran University1
Nenden Nur Asriyani MaryamPadjadjaran University1
Ikeu NurhidayahPadjadjaran University1
Habsyah Saparidah AgustinaPadjadjaran University1
Anita TiaraPadjadjaran University1
Suryani SuryaniUniversitas Halu Oleo1
Idhfi MarpatmawatiPadjadjaran University1
Endah SarwendahPadjadjaran University1
Iyus YosepPadjadjaran University1
Rohman HikmatPadjadjaran University1
Suryani SuryaniPadjadjaran University1
Taty HernawatiPadjadjaran University1

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Sumber metadata: OAI-PMH (metadata jurnal) http://jkp.fkep.unpad.ac.id/index.php/jkp/oai, pertama di-harvest 9 Nov 2026, terakhir terlihat 9 Nov 2026.
Metadata asli (oai_dc) 
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	<dc:title xml:lang="en-US">The Mental Burden of Parents of Children with Thalassemia</dc:title>
	<dc:creator>Septyana, Gita</dc:creator>
	<dc:creator>Mardhiyah, Ai</dc:creator>
	<dc:creator>Widianti, Efri</dc:creator>
	<dc:subject xml:lang="en-US">Burden</dc:subject>
	<dc:subject xml:lang="en-US">parents</dc:subject>
	<dc:subject xml:lang="en-US">thalassemia.</dc:subject>
	<dc:description xml:lang="en-US">Thalassemia is an inherited blood disorder in which there is a chronic abnormality of red blood cells. When a child suffers from a severe illness, the family usually acts as caregivers, which put them at risk of experiencing a burden of care. This study aims to identify the level of charge perceived by parents caregivers of children with thalassemia. A quantitative approach was used in this research to obtain data by using a continuous sampling. The samples in this research consisted of 71 parents of children with thalassemia, who are either their biological father or mother who attended thalassemia center on August 30, 2017 - September 13, 2017. The instrument was used in this research was modified from a Caregiver Burden Scale instrument (developed by Elmstahl). The data obtained were analyzed using a descriptive statistical technique in which parents burden is categorized into three levels: mild, moderate, and severe levels of burden, and they are measured in percentage. The result showed that 36 respondents (50.7%) perceived a mild level of burden, 31 respondents (43.7%) perceived moderate level of burden, and four respondents (5.6%) saw the severe level of burden. This study concludes that most respondents perceived a mild and moderate level of burden, but in terms of responsibility, economy, expectation, and anxiety, they showed a severe degree of burden. Nurses are suggested to maintain or alleviate the burden by providing education, counseling, emotional support and adaptive coping mechanisms for parents of children with thalassemia.</dc:description>
	<dc:publisher xml:lang="en-US">Faculty of Nursing Universitas Padjadjaran</dc:publisher>
	<dc:date>2019-04-29</dc:date>
	<dc:type>info:eu-repo/semantics/article</dc:type>
	<dc:type>info:eu-repo/semantics/publishedVersion</dc:type>
	<dc:format>application/pdf</dc:format>
	<dc:identifier>https://jkp.fkep.unpad.ac.id/index.php/jkp/article/view/1154</dc:identifier>
	<dc:identifier>10.24198/jkp.v7i1.1154</dc:identifier>
	<dc:source xml:lang="en-US">Jurnal Keperawatan Padjadjaran; Vol. 7 No. 1 (2019): Jurnal Keperawatan Padjadjaran; 94-102</dc:source>
	<dc:source>2442-7276</dc:source>
	<dc:source>2338-5324</dc:source>
	<dc:source>10.24198/jkp.v7i1</dc:source>
	<dc:language>eng</dc:language>
	<dc:relation>https://jkp.fkep.unpad.ac.id/index.php/jkp/article/view/1154/220</dc:relation>
	<dc:relation>10.24198/jkp.v7i1.1154.g220</dc:relation>
	<dc:rights xml:lang="en-US">Copyright (c) 2019 Jurnal Keperawatan Padjadjaran</dc:rights>
</oai_dc:dc>