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Parental Adaptation in Caring for Children with Thalassemia: A Meta-Synthesis

Jurnal Keperawatan Soedirman · Vol. 20 No. 3 (2025) · hlm. 221–233

DOI
10.20884/1.jks.2025.20.3.17042
ISSN
2579-9320, 1907-6673
Terbit
2025-11-13
Penerbit
Fakultas Ilmu-ilmu Kesehatan
Bahasa
eng

Abstrak

Thalassemia is a chronic disease that requires lifelong treatment. Children with thalassemia are highly dependent on their parents for daily care and management. This study aims to identify key themes reflecting the challenges, needs, and expectations of parents caring for children with thalassemia through a qualitative meta-synthesis approach based on Roy’s Adaptation Model (RAM). A literature search was conducted in the PubMed, MEDLINE, Scopus, and ScienceDirect databases for English-language articles published between 2014 and 2024. Twelve studies from six countries were analyzed using the Critical Appraisal Skills Programme (CASP). The synthesis identified four meta-themes describing the parents’ adaptation process: (1) physical fatigue and psychosomatic symptoms, (2) psychological stress and parental identity crisis, (3) disruption of family roles and functions, and (4) lack of systemic and social support. These findings emphasize the importance of a multidimensional support approach encompassing emotional, educational, and health policy aspects to improve family quality of life. This study provides a theoretical foundation for family-centered nursing interventions and supports parental resilience.

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40 penulis · 77 tautan kepenulisan bersama · 28 lintas organisasi · menampilkan 40 yang paling banyak terhubung

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  • University of Indonesia
  • Sultan Agung Islamic University
  • Poltekkes Kemenkes Tasikmalaya
  • Mulawarman University
  • Sekolah Tinggi Ilmu Kesehatan Dirgahayu Samarinda
  • Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
  • Sekolah Tinggi Ilmu Kesehatan Bethesda Yakkum
  • Organisasi lain
  • Afiliasi tidak diketahui
  • Organisasi berbeda
  • Organisasi sama
  • Afiliasi tidak diketahui
  • Garis lebih tebal = lebih banyak artikel bersama · lingkaran lebih besar = lebih banyak artikel
Tampilkan sebagai tabel
Rekan penulisOrganisasiArtikel bersama
Defi EfendiUniversity of Indonesia8
Fajar Tri WaluyantiUniversity of Indonesia4
Dessie WandaUniversity of Indonesia3
Elfi SyahreniUniversity of Indonesia3
Yusron NasutionUniversity of Indonesia2
Nani NurhaeniUniversity of Indonesia2
Yati AfiyantiUniversity of Indonesia2
Ida Ayu Kade Sri WidiastutiMulawarman University1
Made ErmayaniSekolah Tinggi Ilmu Kesehatan Dirgahayu Samarinda1
Nopi Nur KhasanahSultan Agung Islamic University1
Dyah Wiji Puspita SariSultan Agung Islamic University1
Apriliani Yulianti WuriningsihSultan Agung Islamic University1
Defi EffendiAfiliasi tidak diketahui1
Permaida PermaidaUniversity of Indonesia1
Siti NurlaelahRumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo1
Neni Ampi Juwita SiraitAfiliasi tidak diketahui1
Sutanto Priyo HastonoUniversity of Indonesia1
Sulistiyawati SulistiyawatiSekolah Tinggi Ilmu Kesehatan Bethesda Yakkum1
Justina Purwarini ASekolah Tinggi Ilmu Kesehatan Sint Carolus1
Maria UlfahIPB University1
Yuyun SetyoriniPoliteknik Kesehatan Kemenkes Surakarta1
Hening PujasariUniversity of Indonesia1
Ema HikmahPoltekkes Kemenkes Bandung1
Wiwin WiarsihUniversity of Indonesia1
Luknis SabriUniversity of Indonesia1
Nyimas Hany PurwatiAfiliasi tidak diketahui1
Suni HariatiHasanuddin University1
Hanny HandiyaniUniversity of Indonesia1
Qori’Ila SaidahAfiliasi tidak diketahui1
Rahmadevita S.A.MRumah Sakit Umum Pusat Dr. M. Djamil Padang1
Zolla Amely IldaPoltekkes Kemenkes Padang1
Dini MarianiPoltekkes Kemenkes Tasikmalaya1
Yusran NasutionPoltekkes Kemenkes Tasikmalaya1
Nur AgustiniUniversity of Indonesia1
Ninis IndrianiUniversity of Indonesia1
Laviana Nita LudyantiUniversity of Indonesia1

Afiliasi berasal dari OpenAlex; metadata OAI-PMH jurnal tidak memuatnya. Penulis tanpa ID OpenAlex dicocokkan berdasarkan nama, sehingga dua orang bisa tergabung atau satu orang bisa terpisah.

Sumber metadata: OAI-PMH (metadata jurnal) http://jos.unsoed.ac.id/index.php/jks/oai, pertama di-harvest 9 Nov 2026, terakhir terlihat 9 Nov 2026.
Metadata asli (oai_dc) 
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	<dc:title xml:lang="en-US"> Parental Adaptation in Caring for Children with Thalassemia:  A Meta-Synthesis</dc:title>
	<dc:creator>Setiyowati, Erni</dc:creator>
	<dc:creator>Agustina, Ayuda Nia</dc:creator>
	<dc:creator>Rustina, Yeni</dc:creator>
	<dc:creator>Allenidekania, Allenidekania</dc:creator>
	<dc:description xml:lang="en-US">Thalassemia is a chronic disease that requires lifelong treatment. Children with thalassemia are highly dependent on their parents for daily care and management. This study aims to identify key themes reflecting the challenges, needs, and expectations of parents caring for children with thalassemia through a qualitative meta-synthesis approach based on Roy’s Adaptation Model (RAM). A literature search was conducted in the PubMed, MEDLINE, Scopus, and ScienceDirect databases for English-language articles published between 2014 and 2024. Twelve studies from six countries were analyzed using the Critical Appraisal Skills Programme (CASP). The synthesis identified four meta-themes describing the parents’ adaptation process: (1) physical fatigue and psychosomatic symptoms, (2) psychological stress and parental identity crisis, (3) disruption of family roles and functions, and (4) lack of systemic and social support. These findings emphasize the importance of a multidimensional support approach encompassing emotional, educational, and health policy aspects to improve family quality of life. This study provides a theoretical foundation for family-centered nursing interventions and supports parental resilience.</dc:description>
	<dc:publisher xml:lang="en-US">Fakultas Ilmu-ilmu Kesehatan</dc:publisher>
	<dc:date>2025-11-13</dc:date>
	<dc:type>info:eu-repo/semantics/article</dc:type>
	<dc:type>info:eu-repo/semantics/publishedVersion</dc:type>
	<dc:type xml:lang="en-US">Peer-reviewed Article</dc:type>
	<dc:format>application/pdf</dc:format>
	<dc:identifier>https://jos.unsoed.ac.id/index.php/jks/article/view/17042</dc:identifier>
	<dc:identifier>10.20884/1.jks.2025.20.3.17042</dc:identifier>
	<dc:source xml:lang="en-US">Jurnal Keperawatan Soedirman; Vol 20 No 3 (2025): Jurnal Keperawatan Soedirman (JKS); 221-233</dc:source>
	<dc:source>2579-9320</dc:source>
	<dc:source>1907-6673</dc:source>
	<dc:language>eng</dc:language>
	<dc:relation>https://jos.unsoed.ac.id/index.php/jks/article/view/17042/7514</dc:relation>
	<dc:rights xml:lang="en-US">Copyright (c) 2025 Jurnal Keperawatan Soedirman</dc:rights>
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